Making a difference means creating a landscape of change in how we approach rare diseases and patients of all kinds. It starts with an understanding of what the everyday looks like - from the onset of symptoms, to diagnosis, to treatment, and beyond. Funding and creating wellness programs for children, patients, and caregivers will progress the future of the diagnostic journey for generations to come.
Providing financial support for patients and families who need assistance through unique partnerships with local hospital partners. This support is customized based upon patient and family needs.
Our Storytime & Activity Program provides fundamentals in learning and awareness of physical challenges and disabilities and embraces empathy and understanding while providing resources in wellness.
Caregivers take on an imperative role for their loved ones with rare diseases. We believe in funding efforts to provide wellness resources that include, fitness, nutrition, meditation and self-care.
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WE’RE HERE TO SUPPORT AND CONNECT WITH YOU.
We're listening and ready to hear your feedback about new programs that could make a difference for you.
THE ENERGY BARRE, 5 CENTRAL ST., STONEHAM, MA
SATURDAY, APRIL 20th 11:30-12:30
Every donation makes a significant impact for the rare disease community. We accept donations via our donation button at the top of our website or through our Foundation Directory below.
Is your company interested in becoming a program sponsor for a fundraising event or program? Send us an email!
Word of mouth is the best way to help us raise funds for patients and families affected by rare diseases. Help us spread the word with a podcast or media opportunity.
We have volunteer positions open in Wellness Advisory, Events, Telehealth, and Fundraising.
Through our specially curated Amazon Book List dedicated to rare diseases, disorders, disabilities and beyond, every children's book purchased goes to Metro & Greater Boston public libraries, schools, and doctor's offices. We also host Storytime & Vision Board Sessions at after-school programs and libraries to educate and create awareness of differences and inspire health innovation for the next generation.
Our Storytime Program features Read Aloud Sessions from two selected books from our Amazon Book List followed by a drawing or coloring activity based on the story selected. There is also time dedicated to make a Card of Support for a sick child, which gets sent to a local hospital. We wrap-up the session with a brief meditation and breathing activity.
Our Storytime & Activity Program has launched in January 2024 with our sessions at the Boys & Girls Club in Stoneham & Wakefield. We read a story from our specially curated Amazon Book List followed by a drawing our coloring activity.
The Serenely Guided Foundation was founded by Sarah Woods after her 3-year journey to diagnosis with Hereditary Hemorrhagic Telangiectasia Disorder (HHT). During that time, Sarah noticed gaps that needed to be filled for patients and those affected by rare diseases. Providing funding to those who are in need of resources such as genetic counseling, genetic testing, telehealth, scientific research, wearable devices, technology, and education, are the inspiration for the foundation.